Jennie's story

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I was diagnosed at Christmas. I had so many questions, but nowhere to go, until I found the BCNA website. I immediately felt at ease.

It was early December when I first found the lump in my breast. I’m self-employed and between working and the lead up to Christmas, it took me a couple of weeks to get an appointment with my doctor, who I saw on Christmas Eve.

When I got home, I called the surgeons and realised they were both closed until 9 January – over two weeks after my diagnosis.

I knew I would have to wait over the public holidays, but two weeks – how would I get through such a long wait?!

With no information, I was starting to get really worried by this stage and called my doctor back in absolute desperation.

My doctor was unaware the surgeons were closed, and while she was sympathetic about my situation, she couldn’t help much. The clinic receptionist found a couple of online resources for me, which led me to BCNA’s online network.

Since my initial diagnosis, I still use the online network. While I still have lots of questions, I want to give back and help people that are affected by breast cancer and experiencing the same feelings of desperation I felt last year.

Unicornkisses:

I received my biopsy results on Christmas Eve, stage 2 invasive ductal carcinoma. GREAT! I was given a referral which was marked urgent and sent to the surgeon and told to call them on the 28th of December.

That was a wonderful Christmas period, NOT. But once I thought I could get the ball rolling I felt a bit better. I rang to find they are closed until the 9th of January, and so is the other surgeon I am referred to. I cannot find anyone open, the GP is sweet but not helpful and I am going quietly mad.

The receptionists say that is a problem this time of year, which is not helpful and I feel like screaming at them. This is cancer here, it doesn’t pause for the Christmas period. Another 10 days waiting to even get to find someone let alone get an appointment.

Keeping busy helps for a while but I just hope heaven it is not progressing while I wait, it has already been over 3 weeks of tests and scans since I found it.

I am so glad to have just found this site.

melclarity:

Hi Unicornkisses!!!! So sorry to hear you found yourself here!!

I totally hear you, timing is everything isn’t it? Now you say you are Stage 2 IDC, this is just from the Biopsy. The hardest part is the waiting absolutely, but take a deep breath and know that this is for certain, the time between now and then is going to be OK!

The Surgeon will most likely order a Lumpectomy based purely on those results, and until you get those results you won’t have a definite pathology. The biopsy is only a guide, so you will get a much picture once that has happened.
I know it is incredibly hard with the urgency of it, but it really will be ok. I’ve had BC twice in 5yrs, 2 major lumpectomies, radiation, tamoxifen, chemo and now Arimidex. If there is anything I can help with or answer, ask away!!!

Hugs Melinda xo

Nadi:

Hi Unicornkisses.
Sorry you had to join us here on this network but I am glad you did. The ladies here were such a comfort when I was first diagnosed at the end of last year. I was beside myself with worry because, like you, the Christmas holidays interfered with the commencement of my treatment. I didn’t have surgery until 5 weeks after diagnosis.

The waiting is the worse!!! Take a deep breath. I know it won’t take the anxiety away, but trust me, a few deep breaths certainly help.

Unfortunately it is out of our hands at the moment. It won’t progress that much in 2 weeks. I know it doesn’t feel like that, but I was told it won’t make a difference with that little extra you have to wait. Once the ball starts rolling however, it will be a whirlwind of appointments.

For now, as you wait, take time to take stock. Do something nice for yourself even though I am guessing you’ll be consumed with worry. It will help you later on. This is just something you cannot change at the moment, so take charge of what you can control. Go out. Do something nice. And come on here and rant all you want. We are here with you every step of the way.

I pray that you get an appointment as early as possible.
Keeping you in my thoughts
Nadine

Unicornkisses:

Thank you to everyone for your insight, suggestions and support. I am reading it all and slowly digesting it. Yes, I have ordered the kit, thank you, and downloaded some of the fact sheets. I started today feeling desperate and thanks to your posts I actually ended the day feeling positive and actually laughing a little, thank you. Waiting is horrid, but now I am more resigned to it.

Breast cancer doesn’t stop at Christmas … neither does our online network.
48 Australians are diagnosed with breast cancer each day. Please make a generous donation today to help support essential BCNA services like the online network.

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Issue 81
Summer 2017