New information to support you

BCNA has a number of new information resources to help individuals and families affected by metastatic breast cancer. To order, visit BCNA’s website.

Hope & Hurdles

The new edition of Hope & Hurdles provides tailored information for anyone affected by a diagnosis of metastatic breast cancer.

The Information Guide has new sections for those whose first diagnosis is metastatic breast cancer, for men diagnosed with metastatic breast cancer and for young women diagnosed with metastatic breast cancer.

Along with the most up-to-date information available on metastatic breast cancer provided by expert health professionals, people diagnosed with metastatic breast cancer have shared their own experiences, lessons they have learnt and practical strategies to help you focus on living well.

In addition to the Information Guide, Hope & Hurdles includes a number of optional items that can be ordered right from the start or at any time in the future.

These include:

  • booklets with information specific to each of the four main metastases sites – bone, liver, lungs and brain
  • new booklets on treatment for the three main subtypes of breast cancer (hormone receptor positive, HER2-positive and triple negative)
  • an introductory booklet ideal for people at the time of diagnosis: Metastatic breast cancer: an introduction.

Hope & Hurdles is packed with information and practical advice crucial to helping you make informed decisions about your individual treatment, care and wellbeing.

When someone close to you has metastatic breast cancer

This information booklet aims to meet the needs of carers, friends, partners, family members and colleagues of people with metastatic breast cancer. The booklet is a revised version of She has secondary breast cancer – How can I support her?

The booklet provides information for of all people diagnosed, including men, and all relationships, including same-sex partners and those who have a friend as their key supporter.

The booklet includes information about:

  • metastatic breast cancer
  • emotional and practical support others diagnosed with metastatic breast cancer have found helpful and, importantly, not helpful
  • how carers, partners, friends and family members might be feeling, and tips for how to cope and where to find practical and emotional support
  • work and finances.

This booklet is included in the Hope & Hurdles kit but is also available separately.

Explaining metastatic breast cancer to children

If you have children in your family – whether you are a parent, grandparent, aunt or uncle – concern about their welfare and how they will take the news of your metastatic breast cancer diagnosis can be one of the most worrying issues of all.

The new Understanding metastatic breast cancer comic may help get the conversation started. From the team that developed the Medikidz explain breast cancer comic for early breast cancer, this comic is aimed at children aged 8–12 years of age. It is based on the story of a real-life family whose mum was diagnosed with metastatic breast cancer. In it, the five Medikidz superhero characters take the children on an adventure through the human body to learn about what happens after a metastatic breast cancer diagnosis.

Understanding metastatic breast cancer has been reviewed by a panel of expert health professionals and BCNA members living with metastatic disease.

Post Pink – living with advanced breast cancer

Queensland’s Advanced Breast Cancer Group has made a documentary film about the experiences of living with metastatic breast cancer. The film is based on the experiences of six women, their partners and families. It looks at the journey from the shock of initial diagnosis and its impact on the women and their relationships, to adjusting to living in a new and meaningful way.

The documentary highlights the value of connection with other women and families and the support that the six women have gained through professionally led peer support.

The Advanced Breast Cancer Group is encouraging people throughout Australia to screen the film in October as part of Breast Cancer Awareness Month.

Post Pink – living with advanced breast cancer is a free resource, available online and in DVD and USB format from the Advanced Breast Cancer Group’s website.

Issue 80
Spring 2017